My mum passed away in 2004, from a rare condition called MSA. I was 18 years old. I thought that would be the hardest thing I would ever have to go through in my lifetime. But unfortunately it wasn’t.
At
the end of 2014, my partner and I found out that we were expecting, we were so
happy.
My
pregnancy was straight forward, a bit of morning sickness early on but nothing
serious. Our 13 week scan was great, as was our 20 week scan. We also had a
number of blood tests that came back fine. We found out we were expecting a
baby boy. Because I was relatively young, and everything seemed to be going
well, our doctors didn’t see the need for any further scans or tests after 20
weeks. I made sure I was super healthy during my pregnancy. I did everything by
the book. No alcohol, no coffee etc.
We
gave birth, at 39 weeks, on July 14, 2015, a day before my birthday.
Cooper
was the most beautiful thing we had ever seen.
And
even straight after birth we were told he was fine.
Things
took a turn for the worst later that day. Cooper was breathing heavily, and one
of the nurses noticed, and took him to the nursery to be checked.
And
so began the worst few days of our lives.
That
night we were told there might be something wrong with Cooper’s heart, he would
need to be transferred for further tests. He nearly didn’t survive the trip
from the Gold Coast to Brisbane.
The
following day, on my birthday, we were told that it wasn’t his heart. He had a
rare condition, called Vein of Galen (genetic, but completely unrelated to what
my mum passed away from). A rare condition, which affects approximately 1 in 3
million babies and is rarely detected during pregnancy unless you have a scan
after 30 weeks. Some cases can be operated on but Cooper’s was too severe. He
was immediately put on life support.
The
next five days were a blur, we asked ourselves so many questions, how could
this be happening? Why was this happening? Was it my fault? Would we be able to
have another baby?
Cooper
survived another night with us by his side. And passed away on the morning of
July 19. Our first born baby, the love
of our lives, was gone. And there was nothing we could do.
For
the next 6 months, everything hurt. The pain was emotional and physical.
As
if the grief wasn’t hard enough, your body is also telling you that you should
be looking after a baby. My milk came in and I had to take tablets to make it
stop. My post baby body was a constant reminder that I had given birth, but had
no baby. We had to pack up a beautiful nursery that we’d spent months setting
up. We had to visit the funeral home. And of course we had to make sure all our
friends and family knew what had happened.
It
was a time when a girl really needed her mother, and I didn’t have her either.
I
returned to work a few months later and everyday someone new asked me how my
baby was going. I had to explain over and over, usually through tears. In
saying that, going back to work was the best thing I could have done. I had somewhere
to be everyday and my colleagues were unbelievably supportive.
But
the main reason I kept going was thanks to my amazing husband and our families,
for them I will be forever grateful.
And
of course the thought that one day, we would hopefully have another baby.
We
started trying again around 6 months after losing Cooper. The first few months
that we didn’t fall pregnant were extremely hard. I wondered if I was ever
going to get pregnant again. There were a lot of tears. But finally it
happened.
Our
second pregnancy was a lot more stressful than our first. We had extra scans
and tests, and constantly worried that it was all going to happen again.
It
was a long 9 months. But we made it.
On
February 17, 2017 we welcomed our beautiful baby girl Zara, the light of our
lives.
For
a long time I wondered if we would truly ever be happy ever again. But I can now
say we are getting there. It’s been tough, but one thing I’ve learnt is the
road to motherhood is not easy for so many people. And sometimes it’s just not
fair.
Last
year Mother’s Day was terrible. How do you celebrate a day, when you don’t have
your mum or your baby? I just cried and cried.
This year will be different
though. This year I will celebrate Mother’s Day with my beautiful baby girl,
and we will remember her amazing brother and my mum, who were both taken from
us far too soon.
Courtney
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